Tuesday, May 10, 2011

Another Tuesday meeting.

This one had someone who had been through the 'system' a year ago telling us about her experience with CFS. Bedridden at one point only 2 years ago or so, had to give up work (although working 70 hour weeks in a hospital - not surprising she got sick!).

Now managing something of a normal life using the 'management' techniques we're being told about although not "cured".

So, back to the recharges and pacing. Although if I really listened to her message I think I would have to take away "give up work now, *before* you get really bad, or it will take much longer to get better".

I *knew* that eventually I'd have give up work through decline in any case, I might be tempted to do it now. But of course it's never that easy.

Our clinician would argue that hopefully by putting into place the management techniques, that won't be necessary. But perhaps another day I'll summon the courage to tell you why I know that I'm close to the edge...

At least for this visit I was able to pick up one of the other people on the course who lives nearby. She'd fallen last night and was still feeling shaky enough that she was glad she didn't have to face the 40 minute drive.

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